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Young Girl Risks Death If She Cries

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Young Girl Risks Death If She Cries

Two-year old suffering from Reflex Anoxic Seizures (RAS), may die if she cries…

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Two year old Tianna Lewis McHugh cannot cry. If she does, it may kill her.

At just 18 months, Tianna was diagnose with condition that causes fatal Reflex Anoxic Seizures (RAS).

In most cases, children who suffer from RAS react to pain, fear of fright, but Tianna has a form so extreme that simply crying can trigger a fit.

When an RAS occurs, Tianna goes into shock, her skin goes pale white, her body stiffens, her heart stops beating and she stops breathing.

Since she was diagnosed she has survived 10 seizures, the most severe of which lasted two hours.

Parents, Ceri Lewis and Andy McHugh, face a daily battle to make sure Tianna doesn’t do what most toddlers love to – cry.

Mother Ceri, 23, an hotel receptionist from Wrexham, North Wales, explained how hysterical she became when she saw her daughter’s first fit:

“I picked her up out of her high chair and put her on the floor and she cried for seconds and then she looked like she had died…

“She went a deathly gray, her lips and around her eyes were blue and her eyes rolled back in her head…

“When she has the fits she stops breathing and looks dead because she stiffens up and her back arches… “I thought she was dead.”

Father Andy, 30, a car sales executive, rushed home and tried to help:

“After five or six blows she took a massive breath and came around crying her eyes out,’

Tianna was taken to the high dependency unit at Wrexham Maelor Hospital, but doctors were unable to diagnose her condition.

It was a fortnight later when Tianna suffered her second seizure, doctors then realized she’d suffered a Reflex Anoxic Seizure. Unfortunately, there is little that can be done for Tianna, however, both doctors and parents are hoping that young Tianna will grow out of the condition. Andy said:

“When she has fits it’s horrendous…When she starts to cry we usually have to flick water in her face to bring her out of the shock…

“She can do whatever she wants but for 18 months we have been cautious with her so that she doesn’t get hurt or shocked and cry…She is our little angel and this makes you appreciate her more…

“She is hyperactive, talkative, bubbly and very active. She’s very well developed for her age.”


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