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Woman With Half A Brain Stuns Doctors

Woman With Half A Brain Stuns Doctors

Woman born with half a brain turns medical thinking upside down….

Michelle Mack from Fall Church, Virginia, was born with only half a brain. But this has not stopped her from accomplishing many of the achievements most growing children make. Mack can speak normally, graduated from high school, and has an uncanny knack with dates.

Not being diagnosed until late into her twenties, Mack found childhood difficult:

“It was very hard for me, It was very hard for me growing up. No one knew the truth about my brain.”

By age 27, doctors had not only discovered Mack only had half a brain, they also determined that the right side of her brain had rewired itself to make up for functions that were likely lost during a pre-birth stroke.

Nevertheless, her childhood and young adult years were fraught with frustration. Mack’s parents, Carol and Wally, realized shortly after her birth that something was wrong:

“There wasn’t a group to turn to,” said Carol Mack.

“Michelle didn’t have cerebral palsy, I knew that. She didn’t have Down’s syndrome, I knew that. I had no place to turn.”

Thankfully,ten years ago, Dr. Jordan Grafman, chief of the Cognitive Neuroscience Section at the National Institutes of Health, finally diagnosed the problem.

An MRI scan revealed she was missing nearly all the left side of her brain. While it was clear Mack has some problems, Grafman said he and the family were shocked by the extent of the damage:

“We were surprised to see the extent of the lesion in her brain, which basically took away the left side of her brain…

“There’s some very deep structures remaining, but the surface of her brain, the cortex is 95 percent gone and some of the deeper structures, structures that control movement, are missing. These are all structures that are important for movement, behavior, cognition.”

The only answer that Grafman could think of, was that Mack’s brain had rewired itself, with the remaining half taking over some of the essential functions that are normally done by the left – actions such as speaking and reading. That rewiring, however, came at a cost, explained Grafman.

“Michelle has fairly normal language abilities, certainly basic language abilities, she can construct a sentence, she can understand instructions, she can find words when she’s talking, but actually she has some trouble in some aspects of visual-spatial processing…

“It’s quite possible that in her learning, in her development, when the right hemisphere either took over or developed some of the language abilities that it cost her in some of the skills that are normally mediated by the right side of the brain,”

In the 10 years since Grafman first diagnosed Mack, some intellectual functions have improved. But recovery has not been perfect as Mack still struggles with abstract concepts and becomes easily lost in unfamiliar surroundings.

The diagnosis does however, explain why Mack had experienced a lifetime of difficulty controlling her emotions.

“He’s helped us understand the reason why I tend to throw fits, temper tantrums, It was because I was missing half my brain.”

Mack will always have some problems, but dad Wally Mack said that Grafman’s diagnosis and treatment answered a lot of questions and gave him hope:

“Dr. Grafman explained that the right hemisphere is taking over, and it might take her a little while longer to get there with all the rewiring that has to take place…

“But that told us all these bad days are behind us and there are nothing but good days ahead.”

Michelle Mack is now 37 and lives with her mother and father. She works from home doing data entry for her church. She is fairly independent, pays rent and can do most household chores. She realizes she’ll need help for the rest of her life but wanted to tell her story to make it clear that she is not helpless.

“I wanted to do this so people like producers, photographers and security guards and police officers learn about people like me…

“that I’m normal but have special needs, and that there are a lot people like me, so that they could be more understanding.”

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